As a PWD, I try to busy myself with hobbies and passions. With hemophilia, my most daring passion is to pursue peak physical fitness. For my seizure disorder, I also chase after a skill that many might consider taboo—cooking. I love food and I love eating—it’s always been an important part of my life. All …
Calculating Risk in the Kitchen: Why and How I Cook with a Seizure Disorder Read More »
Hemophilia is a very rare genetic disorder, occuring in only 1 of 5000 male births for hemophilia A. Hemophilia B on the other hand occurs in 1 of 25000 male births. Since it’s so rare, we’re susceptible to form misunderstanings of it. There are a variety of common myths and misconceptions regarding the illness. Below …
An Instructional Manual for Your Hemophiliac: Busting Common Myths and Misconceptions Read More »
I get asked this question a lot. As a hemophiliac, what activities and sports can I pursue that can allow me to be active, yet keep me safe from the possibility of internal bleeding? It’s a sensitive subject for many hemophiliacs, especially in the third world. We don’t have access to medication, so it’s difficult—actually, …
Being aware of the benefits of playing sports and being fit is a strong motivation for you to adapt that lifestyle. It’s now just a matter of how and where to start and staying motivated. This is a concern I find many hemophiliacs—as well as their caregivers—struggle with. The multitude of options can easily confuse …
Overcoming Athletophobia: Sports for Hemophiliacs and How to Get Started Read More »
It’s difficult for us to value brokenness, especially for those damaged with disability. Imagine a three-legged puppy. Regardless of how cute she is, stick her in a litter of fully-functional, anatomically complete siblings and I’m willing to bet you that she’ll be the last one to be adopted, if at all. Being able to appreciate …
Beauty in Imperfection: How the Art of Kintsugi Can Help PWDs Read More »