Hemophilia is a very rare genetic disorder, occuring in only 1 of 5000 male births for hemophilia A. Hemophilia B on the other hand occurs in 1 of 25000 male births. Since it’s so rare, we’re susceptible to form misunderstanings of it. There are a
I’ve played multiple roles across my life. I’ve been son, student, PWD and advocate. Above all are my roles as father and spouse. My family plays a key role in my life. They’re my source of inspiration, strength and they’re the reason I’m here now.
I get asked this question a lot. As a hemophiliac, what activities and sports can I pursue that can allow me to be active, yet keep me safe from the possibility of internal bleeding? It’s a sensitive subject for many hemophiliacs, especially in the third
Being aware of the benefits of playing sports and being fit is a strong motivation for you to adapt that lifestyle. It’s now just a matter of how and where to start and staying motivated. This is a concern I find many hemophiliacs—as well as
It’s difficult for us to value brokenness, especially for those damaged with disability. Imagine a three-legged puppy. Regardless of how cute she is, stick her in a litter of fully-functional, anatomically complete siblings and I’m willing to bet you that she’ll be the last one
Meet My Thoughts
Dig deeper into the mind of a PWD—or Person With Disability—and gain a deeper understanding of what it’s like to live with chronic illness
– Find insights and reflections about living life afflicted with chronic illness through stories about experience, coping and fatherhood with a disability
– Discover practical advice for PWDs, especially hemophiliacs for coping with mental health issues and improving one’s quality of life.
– Be an active participant in our pursuit to raise awareness and education about PWD issues.
Interested in Collaborating?
My door is always open for people willing to work with me towards achieving our goal of Advocating Disability Rights. You can reach me through my email and let’s work towards a brighter outlook for PWDs together.